Raging Dragon Fistula

So, in case you know me and you've heard I was sick and you're not really sure or don't understand what's going on with me, I will explain.
I have fistulas, a common part of Crohn's Disease. When one has Crohn's Disease or some other bowel related illness, the colon and/or intestines are very, very sick. They can be bruised, bleeding, ulcerated, inflamed, etc. Now, in my case, the walls of my colon became very ulcerated. Now what happened in my case (a bunch of times), if you can imagine, was something like this:
Pretend your staring at a wall that goes all the way around you. You are now in the colon.
Now, imagine you just threw a bucket of acid on the wall. It doesn't erode instantly, but after a while, a small dent forms, then the indentation gets deeper and a hole forms. It could be as small as the tip of a pen, or it could be bigger.
The first time I got really sick, the holes just stopped in mid flight and one stopped right near the skin and filled up with infectious puss. A lot. So combine the pain of the pressure of swelling and the pain of your tissue (of your butt) separating in big pockets randomly (right in the sensitive part of your butt!). The infectious puss (abscesses) close to the skin swelled up so much that they broke through the skin (on the inside of my butt cheek!) and the infection oozed out. So, now they were fistulas. A fistula is when an abscess makes it to the skin, forming a complete tunnel or hole from your intestine to the skin! So, if you can't imagine how bad this hurts, try to picture your most sensitive body parts having holes drilled through them. Just real slow...
The second time (this time) I got really sick, those fistulas (tunnels) re-opened, thus started to leak. My toilet paper expenses thus go up because I'm constantly trying to soak up the drainage. I go to the emergency room, they give me antibiotics, but for some reason the antibiotics don't work very much.
So then the process starts all over again... Except this time, the tunnel travels up into my perineum. Do you know what your perineum is? It's your taint, your chode, your fleshy fun bridge, the space between your privates and your pooper.
And do you know how bad it swells up?
Do this:
Stop typing, double-clicking, or whatever your doing (keep reading).
Look at your right hand.
Now clinch your right hand in to a fist.
Now place your fist between your legs, high up close to your groin.
That's what was going on with me, BUT UNDERNEATH THE SKIN!
After about 6 weeks of having that much swelling, it finally gets to the skin! So, now there is drainage constantly coming out between my legs like I'm a some sort of woman with the period from hell! And, it still feels like someone is kicking me in the privates. And, if I need to pass gas, but don't, the air forces its way into that hole in my colon wall and up through my perineum. I don't know if you've ever straddled a cactus, but that's the only thing I can imagine it feeling like. So, yes, I have to take a lot of pain medicine, and I still end up screaming randomly, and I have hold myself with my hands down my pants so I don't start crying, and I can only lay on my back, and if I sit up my butt will be covered in blood and puss, and I go through a toilet paper roll in two days by myself.

I'm supposed to get another infusion. That will help it, but, honestly, I don't think it will fix it. I bet you I have to get surgery sometime in the near future.
You know what that means?!?! I will have to have a colostomy bag!

Sorry if this is too much, but this is me. This is my disease. If you care about me, then you care to know.

Shalom.